EXTRA Team Photo

Centre intégré universitaire de santé et de services sociaux de Saguenay-Lac-St-Jean (Québec)

  • Roberto Boudreault,  Chef du département régional de médecine générale, Centre intégré universitaire de santé et de services sociaux du Saguenay-Lac-Saint-Jean, St-Félicien, Québec
  • Isabelle Boulianne, Adjointe aux affaires universitaires, Centre intégré universitaire de santé et de services sociaux du Saguenay-Lac-Saint-Jean, Chicoutimi, Québec
  • Nancy Houde, Chef de service en soins infirmiers - Continuum clinique, Centre intégré universitaire de santé et de services sociaux du Saguenay-Lac-Saint-Jean, Chicoutimi, Québec
  • Sylvie Massé, Directrice des soins infirmiers, Centre intégré universitaire de santé et de services sociaux du Saguenay-Lac-Saint-Jean, Jonquière, Québec

Patient Experience: A Common Understanding of the Transition Toward Palliative Care

Considered a chronic illness, cancer has been the primary cause of mortality for fifteen (15) years in Saguenay-Lac-Saint-Jean and is responsible for 35 % of the deaths observed annually in the area. The number of new cancer cases and deaths continue to increase significantly in the region.

The transition from curative care to palliative care is often a traumatic experience for patients and families. As for healthcare professionals, they often lack training, are poorly equipped and do not know when it is a good time to broach the subject patients. However, the earlier palliative care is integrated into the care of patients with incurable chronic illnesses, the better. Moreover, when this is offered, the quality of life and the survival rate of patients increase and symptoms of depression decrease. 

Based on the experience of patients and families, as well as that of professionals in the field, our team would like to acquire a common understanding of the clinical transition from curative to palliative care. In order to do this, people living with incurable chronic illnesses will be questioned about various aspects of their palliative care experience. Healthcare professionals who work the most with this type of clientele will also be interviewed.

Acquiring better knowledge of the true needs of patients and healthcare professionals with respect to their experience is our starting point. Indeed, basing interventions and actionable strategies on real and felt needs, on an enhanced continuum of care, on treatments that are better suited to the situation and on better coaching will more than likely facilitate the transition from curative care to palliative care.